Wednesday, June 6, 2012

Day 63: June 6, 2012

Dallas went to sleep at a fairly decent time last night; much better than the after midnight bedtimes.  Last night was also the first night he slept in his bed all night by himself!  Way to go, Dallas!  We, on the other hand, didn't fall asleep until after 1am.  I finally started drifting off to sleep around 1:30am and was awoken by a loud scream, "Mommy!"  I jumped out of bed, thinking that something bad happened to him, so I went in there... "Mommy, can I have some apple juice and a warm blanket?".  I smiled, "Sure Dallas."  So I went to get him some apple juice and warm a blanket in the dryer, and he fell back to sleep.  


Dallas and Mac both slept in this morning, not getting up until around 9:30am.  When Dallas got up, he was complaining about pain in his butt, his back, his right arm, and his legs.  I think physical therapy wore him out yesterday, as he did a lot.  We have to go back again Thursday at 9am for another session of physical therapy and occupational therapy.  I think a day of rest between sessions is a good idea, considering how sore he is the following day.  


I went out to buy a new shower head yesterday, a hand-held one, so that Dallas could start taking showers again; and he still hasn't used it.  Figures.  But, it is a much better shower head than the original one, so that's a plus!  Besides, it'll be used by him soon, I'm sure of it.  


Dallas is beginning to develop more and more blisters on his donor sites.  I really wish there was something I could do to prevent them, but it doesn't seem like there is any way to do that.  Time will heal them, eventually; and in the mean time, Dallas has to be in pain from something else.  Sigh.  


Dallas is eating a little better today.  I was worried yesterday, as he only had a bowl of cheese balls before going out to dinner.  At dinner, he had 1 and 1/2 breadsticks, a fruit cup, and about three bites of spaghetti.  So far today, he's had 2 go-gurts, a handful of cheese balls, and 3 chicken nuggets.  Hopefully he'll eat more tonight.  He really needs to keep his strength up, and build his immune system.  Plus, his body is burning off so many calories through healing, they need to be replaced.  


Dallas needs more medical devices for therapy.  His speech therapist told us we need to get a Z-Vibe.  It's a vibration device that will help with his scarring on his face.  Thankfully, these aren't too expensive, only costing around $35 on amazon.  So I guess we will be ordering one tonight.  We are also going to talk to his Occupational Therapist about measuring him for a compression mask.  I think we will have them go with Barton-Carey, so that he can have a camouflage one, rather than a plain flesh colored or black mask. If we can get it in the camouflage, that will match his compression garments (that should be arriving by Friday).  We really need to get him something for his face, because the longer he's without compression, the more scarring will form.  


I filled out the paperwork for homeschooling Dallas and Mac.  Still looking at curriculums, haven't decided for sure which one to use.  My Father's World was recommended to us by Chad and Annie; and I have come across another curriculum called SonLight (which is MUCH more expensive, but looks like it may be more thorough as well).  I really need to get the ball rolling on this if it is something we are going to do this year.  I want to be completely prepared before the school year starts.  And the fact that I'm not only majoring in Psychology, but in Early Childhood Education as well, should help me through this greatly.  


Bath time was not a good time today.  Dallas was very adamant about not getting in today, trying everything he could to get out of it.  "Mommy, I PROMISE I will take a bath in the morning."  "Just let me watch this one more show, and THEN I will take a bath."  It took about an hour to get him into the tub tonight.  Dallas is getting more "pimples" on his back, his neck, and some areas on his cheeks.  Dana, the OT, said that it was his oil glands building up underneath the new skin.  Great... five years old and already suffering from acne problems.  She said to apply a warm washcloth and it will come up; that didn't work tonight.  


After Dallas' bath, I got his dressing back on and his PJs on.  He said he was tired and wanted to lay down to rest, so I put him in his bed.  He also had some apple juice and grapes before dozing off to sleep. Dallas fell asleep around 9pm tonight.  That's good.  He will need a good night's rest; tomorrow's therapy will be more intense than Tuesdays.  


Have a good night!  Hoping Dallas will do the same!  :)





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Denielle