Super Busy Weekend! Day 74: June 17, 2012

The last four days have been filled with activities.  Thursday morning we left to take Dallas to Winston-Salem for his clinic visit with Dr. Zeller at 11am.  We got out the house late, and I just knew we were going to end up late for his appointment; but to my surprise, we were actually early.  Dallas weighed 48.6lbs, so he's lost some weight since the last visit; but she didn't seem overly concerned with it.  Dr. Zeller looked at Dallas and said he was looking better.  She is impressed with the way his skin is healing (as are all of us).  She said there are still some areas that concern her, such as the blisters on his body, so they have to be watched; as well as how his skin is tightening around his arm.  But for the most part, she seemed pretty satisfied with how he is progressing.  She also tried massaging the staple out of his arm, but was unsuccessful, and he didn't want her taking it out, so she scheduled an appointment with the sedation suite to remove the staple from his arm.  It was scheduled for Monday, July 2nd, the same day we go back to see Dr. Molnar.

After seeing Dr. Zeller, Dallas saw his OT, Dana.  She looked at his mask, since one of the straps broke off, and she fixed it.  She wasn't too thrilled to hear about the fabric mask (from what I gathered) that we are looking into getting him.  She claimed that they flattened out the facial features and didn't give proper compression.  But if that was the fact, why would you use the same fabric compression garments on the body if they don't properly compress?

Anyhow, after the visit, we went to Travis' mom's house for the weekend.  Dallas was pretty busy the entire time, and was excited to be able to play with his cousins.

The drive home was exhausting.  But, on the positive side, we got to pick Tyler up.  So Dallas was thrilled!  He'll be with us for about 6 weeks; and I'm sure it will do Dallas some good as well.

Dallas' Methadone wean is going well.  He is down to 1.9 every six hours.  Originally he was at 3.2 every six hours.  By the end of the month, he is supposed to be off.  That will be great!  Can't wait to have him off of that.  It's such a hard drug, he shouldn't have to take something like that.  So when he gets off the Methadone, I will be thrilled!  We will also be able to remove his Clonidine patch the Tuesday after his Methadone is stopped.  So two meds at once.  How wonderful!  The doctors said that the Clonidine isn't that high of a dosage, so he doesn't have to be weaned off of it.  Great news!

Some more good news... Dallas' new compression garments came in.  They are Dallas Cowboys compression garments.  He LOVES them!  As soon as they are washed and he's wearing them, I'll post a picture.