Monday, June 11, 2012

A Great Day at Physical Therapy! Day 68: June 11, 2012

Building a Tower at PT
Last night (at midnight) we began Dallas' Methadone wean.  He will be going down by 10% every other day, with the last dose (supposed to be) given on July 4, 2012.  So it will take a few weeks, but he should be off of another med by next month!

Dallas had a rough night.  All of a sudden, around 3am, Dallas started screaming and crying.  I jumped up out of bed, thinking he had hurt himself, had fallen out of the bed, had gotten up and tripped... something... but he was laying there, screaming and crying in his sleep.  A night terror perhaps?  A wrong move that pulled something?  An effect of the lower dose of Methadone?  I don't know.  We asked him what was wrong, but all we got was more screaming and crying.  After about 20 minutes of this, he went back to sleep.

This happened again when I gave him his 6am dose of Methadone.  He started screaming and crying shortly thereafter.  I hope it's just from movement, because he doesn't really move at night; so perhaps it's just his muscles and joints aching from lack of movement.  
Riding the Trike

Dallas has an obsession with weighing himself every day.  He wants to see how much he weighs (though he doesn't know what the numbers really mean).  Over the last week, he's lost about 2lbs.  It worries me that he continues to lose weight; but I'm sure it's normal for his weight to fluctuate.  However, he has been eating less this week, so we have to ensure that he keeps his calories and protein up.

Physical therapy was at 12:30pm.  Dallas really worked out a lot this session.  The entire hour, he was bending, stomping, riding a trike, carrying different balls, playing games, and more.  Talk about stressing mom out!  Every time he would barely lose balance, I would jump up ready to catch him!  I am a nervous wreck when it comes to him doing more on his own!!!  But, it went very well.  He has physical therapy again tomorrow, and speech therapy to follow.

Playing Games at PT
This afternoon, after we got home, Dallas didn't do too much.  He rested most of the time, guess he really did wear himself out.

Bath time went pretty well.  Not near as much as anxiety as some days before.

Dallas didn't eat much today.  The main things were applesauce and a banana.  A few bites of noodles.  A chicken nugget.  And a small portion of a freezer pop.  Although his food intake is relatively low, he is doing very well on liquids.

Since Dallas had such a busy day, and a very hard night, maybe he will sleep better tonight.  We can only hope!



  

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Denielle