Day 67: June 10, 2012

Things went pretty well yesterday.  We didn't do the cook out at the park; it ended up being around 90 outside, so a bit too hot for Dallas.  But we did set up a play place on the back deck for the kids.  They now have some soft mats with toys back there to play with.  So that will be good for Dallas, so that he can get out and play, without putting him at risk of too much sun exposure right now.  Mac loves it back there!

I also got the kids some crafts to do.  Dallas and Mac are going to paint a picture later today, and Kiana has more stuff for her drawing.  The OT said that it would be good to hang things on the wall for Dallas to do; such as pages to color, painting, and anything else that requires him to look straight ahead, rather than looking down.  As he is healing, his skin is tightening, and hard scars are forming, restricting his movement.  So it is imperative that we do things that require him to stretch for long periods of time.

His skin is improving daily.  It's amazing how much these compression garments help out!  We really need to get him a mask, because the scarring is getting worse, and causing lumps.  Hopefully tomorrow I can get them to measure Dallas for the face mask and have it overnight shipping.  It took 4 days to get his compression garments in, but maybe if we order it Monday, we can have it by Wednesday (it depends on how long it will take to have them make it).  Hopefully it only takes a day to make the mask, whereas it took three days to make the garments.

We were also going to take Dallas swimming last night, after the sun began to set.  But he decided he didn't want to go.  He wants to go tonight, so we will see how that goes.

Yesterday went pretty well overall for Dallas.  His bath wasn't near as difficult as it has been, and he went to sleep at a decent time (around 10:30pm).  I am going to start working on getting him back onto schedule.

Dallas woke up this morning pretty upset.  He said he was tired because he didn't get much sleep last night; that he had nightmares.  Hopefully it wasn't about the accident.  The good thing is that Dallas doesn't have a problem discussing what happened.  He will freely tell anyone who asks, exactly what happened to him.  He also has developed another blister on his right arm, right near the elbow.  It's been bothering him quite a bit.  But they said that it will be normal for him to develop blisters.  Normal or not, it's got to be extremely painful for him!  Also, the spot that was really raw on his right arm is beginning to get puffy.  It looks like it's turning into granulation tissue.  I sure hope not.

Next week will be very busy for us.  Dallas has PT/OT on Monday, PT/Speech Therapy on Tuesday, PT/OT on Wednesday, Thursday we have to drive to Winston Salem for clinic, Friday will hopefully be a day we can relax, Saturday we will be getting Tyler for a few weeks, and Sunday we will have to drive back home.

I hope the remainder of the day goes pretty well for Dallas.  I know it's difficult for him, but he's getting so much better.