Saturday, June 9, 2012

Happy Days are Here Again! Day 65: June 8, 2012

I don't know who had a more restless night; Dallas or me.  We had to spread Dallas' Methadone and Atarax doses out over the course of 2 hours.  So he took about 1ml of Methadone and 2ml of Atarax every thirty minutes.  This made his midnight dose very difficult; and needless to say, I didn't fall asleep until well after 2am.  Dallas slept in our bed again last night.  And every time I moved, he would jerk in his sleep.  It also seemed like he was having nightmares, as he screamed out a few times in his sleep.  There are a few times when he would wake up asking for something to drink, so I would go downstairs to get it, and by the time I got back to the room, he was back asleep.  I finally started drifting off around 3:30am or so, and Mac came running into the bedroom, wanting to sleep in the bed with us.  Really?  Four people in a queen sized bed?  Dallas takes up most of the bed, since he needs the most room.  Mac couldn't sleep between us, just incase he rolled over, we didn't want him hurting Dallas.  He couldn't sleep on the outside, he'd roll right off the bed.  So he slept between my legs, on top of the covers, at the foot of the bed... really?  Dallas had his right arm resting on me (in it's brace) and his right leg propped up on me, and there Mac was, laying between the bottom of my legs.  Oh yeah... that sounds like it has comfort written all over it, huh?  About an hour and a half later, Mac decided he wanted to sleep in his bed.  So off he went.  Did I mention that I didn't have any sleep?

Slushy Magic
Dallas did exceptionally well today.  This morning his temperature was at 98.1.  He had energy, he was happy, he was more like Dallas.

We used the Slushy Magic thing that Mac got for Dallas yesterday.  I was expecting it to be this gimmick thing, that once you buy it, it doesn't do what it shows on television.  But to my surprise, it actually worked.  The boys had Blue Gatorade slushies.  And while it does work, I think that the instructions should be changed.  Line three says:  Replace lid and shake for 1 to 2 minutes.  Then your drink will be a slushy.  It should read:  Replace lid and shake until arms go into muscle failure.  Because that's about how much you have to shake for it to actually slushify.

Dallas' compression garments came in today.  Dallas saw them and was super excited.  So he took off his clothes and TubaGrip and put them on.  They were most definitely a snug fit; but he likes them.  After wearing them for a while, I looked underneath at his leg, it's amazing how smooth his leg is looking!  Just imagine if he had gotten these in when he was SUPPOSED to, a week ago (but due to a missing measurement, he didn't get them until today).

New compression garments
Our Little Soldier!  
I went ahead and ordered another one.  Since Dallas will have to wear it 23 hours a day, we need to alternate between two (for washing purposes).  The only reason we didn't order two to begin with was that we wanted to make sure the measurements were right.  Since it fits pretty well, I went ahead and order another one.  This time, it's a dark blue fabric with silver stitching and will have a Dallas Cowboys Star on it.  Hopefully it'll be here by Wednesday, since we have clinic again Thursday.

We did a cookout with the neighbors, and Dallas had fun!  This was the first time he's actually WANTED to leave the house, so that's good.  We had ribs and hotdogs with a bunch of different sides.  Dallas decided to eat chips and Mac and Cheese, but that's fine, considering he really hasn't ate much today anyways.  He is holding down plenty of fluids, so maybe tomorrow he will eat more.

We are supposed to be having another cookout tomorrow, this time, going to Coonskin park.  We will set up under a shaded area and bring a canopy and some things for the kiddos to do.  Hopefully Dallas will still want to go, because as of right now, he's really looking forward to it!

A great day for a cookout!  :)  
It took an act of congress to get Dallas to take a bath.  After about 30 minutes of trying to get him into the bath, he finally got it.  Once he was in, he was fine... it's just the initial part of getting in that scares him.  Hopefully all these fears will subside soon.  After the bath, Dallas went to bed within an hour.  He needs a good nights rest.  Especially if we do go to the park tomorrow.


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Denielle