A Good Weekend. Day 81: June 24, 2012

Dallas had a decent weekend.  During the days, he played with his brothers; as well as played on the PS3 with Daddy and Bird.  He's done very well physically.  Today, he started hopping on one foot.  And tonight, he did 3 push ups!  Really!!!  We were THRILLED!  This was an amazing feat for him.  I thought it would be many more months before he had the strength to do this!  He continues to shock us, and inspire us daily!  His determination, his will, and his strength are absolutely amazing!

Yesterday, we had a cookout.  He had fun playing with Alex, Tyler, and Mac.  They played "zombies" where they ran around, found zombies, and killed them.  They played "pop goes froggio" a game I bought about a week or so back.  They had a great time together.

He's worked his way up to wearing his compression garments 23 hours a day.  He wasn't able to at night time, but now is able to.  Now, we are going to start giving him baths twice a day, once in the morning, once at bedtime, due to the increased sweating at night in the compression garments.  This should also help with his itching.  There is so much skin flaking off, but that's a good thing, because his new skin is filling in.

There are some areas that look AMAZING, while others, not so good.  I cannot believe how great his arm looks!  His arm was the worst of all, it had the deepest burns, required being excised down to the muscle, had to have Integra placed (due to the severity), had 3-to-1 grafting (the mesh netting look), and is looking the best, is the smoothest, and doing great!  There are other areas that are continuing to get worse/tighter/more rigid.  But hopefully with time, massage, and therapy, everything will work itself out.

The only difficulties we have had this weekend was him sleeping at night.  Dallas has been having a hard time sleeping; waking every hour and a half to two hours, crying and screaming out in his sleep.  I think he's been having nightmares.  I hope it's not about the accident.  Because in his sleep, while he's crying out, he keeps saying "I want to go home; I just want to go home".  I have had to wake him a few times because of how agitated he was becoming.  So HOPEFULLY tonight, he will sleep better.

I'm also wondering if it has anything to do with the Methadone wean?  He is down to 1ml every 6 hours.  At midnight, it goes to 1ml every 8 hours.  Then Wednesday, it goest to 1ml every 12 hours.  Friday, it is 1ml daily.  Then Sunday, he will be finished.  But the docs said that he could experience some symptoms of withdrawal during the wean, so I'm not sure if that's contributing to the sleep problems.

We go tomorrow to Huntington to have Dallas fitted for his face mask!  This time, we are getting the compression garment face mask.  We will get him a camouflage mask, as well as a navy blue one, each to match his compression garments.  He says he actually WANTS to wear these ones.  So we should have them by the end of the week.  That would be WONDERFUL!

Time to give Dallas his bath.  He didn't get up until 3pm, so we waited a little while to give him his bath.  Have a good night!  Hoping to do the same.  :)