Worn Out! Day 69: June 12, 2012

Wrestling  :)

Last night before bed, Dallas and Mac were on the back deck and started wrestling!  Talk about making me a nervous wreck!  I was terrified that he would end up splitting one of his grafts open or getting hurt.  But, he didn't, and they had so much fun!  It was great to see Dallas and Mac rough-house like that.  It starts to lift your spirits, to know that Dallas is getting to be himself even more.

Dallas had another rough night; more nightmares.  Didn't want to get up this morning and get dressed either.  He was completely opposed to wearing his garments, he says they hurt him.  I guess the newness and novelty wore off.  After some fussing, he finally put them on.  He also woke up VERY itchy, and sore.  His right leg was extremely sore this morning, which I am assuming is due to physical therapy yesterday, and all the squatting he was doing.

We had to leave early this morning for PT and Speech Therapy.  Dallas was super excited when we got there.  As soon as we got out of the car, there was a woman walking in the parking lot with her children.  The little boy, who couldn't be any older than 5 or 6, stopped when he saw Dallas and asked his mom "What happened to that little boy?  What happened to him?"  He continued to ask that until Dallas was completely out of sight.  Once the little boy was gone, Dallas started laughing and said "That little boy kept asking what was wrong with me, that's silly, huh mom?"  I told him that it was silly, but he was curious to what happened.  Dallas asked me "Why?"  I told him because he sees something happened to you, and he doesn't know what happened, and he's concerned.  Then I said, "But you're getting so much better.  Stronger every day, huh Dallas?"  He smiled and said "Yea mom, Stronger every day.  That's what Poppa says."

Physical therapy went well, for the most part.  Dallas was VERY active today.  He started out riding the trike again, for about 15 minutes.  Then he played the Pop Goes Froggio game.  He LOVES that game; think we are going to buy it for him so him and Mac can play it together at home.  Not only will it be fun, but it will be good physical therapy as well.  During the game, however, Dallas' blood sugar dropped really low and he almost passed out.  All of a sudden, he started swaying around and saying "I don't feel so good," so we had him sit down, he ate some apple sauce and fruit snacks, and had a juice box.  About five minutes after that, he was fine and was ready to play.  So to wind down, they built a puzzle.

After PT, Dallas did speech therapy.  About 20 minutes of facial massage.  Julie, the speech therapist, said that the scar tissue is starting to soften more, giving him better flexibility in his mouth, and also reducing the amount of pull on his lower eyelids.

Dallas rested the remainder of the day, being completely worn out from PT the last two days; and just think... he gets to do it all over again tomorrow!

Jessica, Dallas' physical therapist for today, called to set up Dallas being fitted for a new face mask.  I should know tomorrow about when it will be.  We will have to go to Cabell Huntington (a little over an hour away) for the fitting.  Hopefully, it'll be sooner than later; Dallas REALLY needs the compression on his face.

Dallas was so worn out today, that he didn't take a bath; so rather than having him more irritated and waking him up completely, I decided to do a sponge bath, so he could continue to relax.  He ended up going to bed at 8:30pm tonight.  Maybe, just MAYBE, he will sleep without nightmares tonight.  Pray for him to have good dreams, please.  He really needs a good nights sleep.